Kai was a fussy baby from birth. He NEVER slept and cried a lot. We went from diagnosis of colic to reflux to food sensitivity but no matter what I did I could not seem to make him feel better. Every few weeks i was at the pediatrition trying to find out what was going on, but Kai always looked good. He was eating well, gaining weight and was absolute adorable! Around 6 months old It was obviouse to me that he was falling behind developmentally and I pushed to see a neurologist. After 8 months of fighting to find out what was wrong I got our answer when I heard those devastating words 'We found a large mass in his brain'.

On May 29, 2011 Kai was diagnosed with an inoperable brain tumor. A grade II hypothalamic optic glioma.
The next day I sent my 8 month old baby boy into surgery to place a shunt in his brain to help relieve the sever hydrocephalus being caused by the tumor. Recover from surgery was tumultious, but eventually he was back to himself. He was smiling agian, standing and eating. Four weeks after surgery we went to the Jimmy Fund Clinic for the first time and he started on chemotherapy.

Kai just turned two on Septmeber 5th of this year. It has been 16 months since diagnosis and we have tried three different chemotherapy protocols with no success. His tumor has left him legally blind and unable to walk or talk. His tumor is large and continues to grow.

A few weeks ago we decided to stop Kai's treatment and focus on comfort care and living each day to the fullest.

That same week Kai's Neat Feet arrived in the mail.

As unimaginably devestating and heartbreaking as it is to live in this world of childhood cancer, this journey has also brought us to some of the most kind, selfless, caring and giving people I will ever know. Opening that box and putting Kai in his first pair of little sneakers, made just for him, brought smiles and light into a dark day. These are the moments we are fighting for now. Thank you PNF you have touched our hearts!