Ramsey
Ramsey was diagnosed with Acute Lymphoblastic Leukemia on February 11th 2009 at the age of 2 1/2. It was obviously a day that forever changed our lives. Hearing those dreadful words are really the most horrible moments of my life. It has been a long, rough rode, but almost exactly three years later, he is doing great! He has less than 3 months of treatment left and his prognosis is good. He is a happy, spunky, sassy, adorable 5 year old. I would never ever choose for my child to have this wretched disease, but we have learned so much and made so many incredible friends along the way. I believe our journey has brought out the best in all of us. We live and love like we should. We have more compassion than ever before and we are more grateful for even the little things than ever before. Thank you Madison for being a special little part of the last few months of this journey. You are a ROCKSTAR!!
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Cassara was diagnosed with Chiari Malformation in Feb 2011 at 9 months old. Chiari malformation is a serious neurological condition in which the cerebellum is pushed down through the skull and crowds the spinal cord, putting pressure on both the brain and spine causing many life altering sometimes even life threatening symptoms. there is NO cure for Chiari and many children have to go through painful brain surgeries to relieve some of there symptoms. has had many medical challanges caused by the Chiari. She can't safely eat orally as she aspirates and gets pneumonia. She has had many hospital stays due to aspiration pneumonias, feeding intolerance/ftt,gerd and delayed gastric emptying. Cassara just had brain and spine surgery to relieve pressure on her brain and spine.
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My Story... my daughter annmarie born July 15,2009 Was diagnosed. With AML on March 15,2009 since then Annie has been through everything. She started with fevers and then her appetite was very low. Annie was sent to the hospital where they did blood cultures and Thats when our journey began . Annies blood cells were abnormal I met Dr Canales and he did a bone marrow aspiration and the next day is when i found out my daughter had Leukemia. Annie went through surgery getting a broviac placed in her chest. After broviac she started chemo it ran for 24hrs for 6 days Annie got sick and went to picu . Then her hair started to fall . Annie finished her chemo and was in remission in September of 2010. But one November 2010 she relapsed she got chemo again and we were sent for a bone marrow transplant in San Antonio on Feb 2011 everything was going good until blasts appeared in her cultures. After a few days of transplant. My Annie relapsed again.... So were on chemo again and trying to leave for a 2nd transplant in San Antonio.
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Emalee was diagnosed in Feb. 2010 with stage 4 high risk neuroblastoma at the age of 2 1/2. She has undergone many rounds of chemotherapy, a stem cell transplant, 2 major surgeries to remove her tumors, radiation, ch1418 antibodies, accutane therapy and is now currently enrolled in the 3F8 antibody trial at Sloan Kettering in NYC. You can read more about her journey at www.helpsupportemalee.com!
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